My wife Bev and I have had 25 years of experience in walking with our daughter Nicole, who lives with severe, multiple disabilities. Thanks to Bev's forward thinking, we've prayed, and sought advice, and read books and magazines so that we could keep looking ahead to do what's best for Nicole.
I ran across this brief guide today that looks like it could be very helpful: Charting the Life Course: A Guide for Individuals, Families, and Professionals. Charting the Life Course uses a matrix of six life stages: 1) Wondering if Meeting Milestones, 2) Getting the Diagnosis, 3) Everyday Life during the School Years, 4) Realizing School is Almost Over, 5) Living Adult Life, 6) Preparing for End of Life. Use these six stages in life, the guide then gives questions one needs to ask regarding various areas of life during each of these stages: Daily Life, Community Life, Safety and Security, Services and Supports, Healthy Living, and more.
What have you found helpful as you have prepared for the future of your child?