I feel sorry for people who don’t have the privilege of raising a child who has a disability
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“Two thirds of Americans with disabilities who want to work are unemployed or underemployed,” says a statement on employment from the American Association of Persons with Disabilities (AAPD). What a waste! So many people, so many gifts and talents going unused or underused. It doesn’t have to be that way.
Why is a church without people with disabilities incomplete? What do we mean by the word “disability”? What is ableism? In what ways are people with disabilities marginalized by societies around the world? What is “healing”? A friend of mine, Carolyn Thompson, directed me to a pithy statement called “The Accessible Church: Toward Becoming The Whole Family Of God” which she helped draft for the Massachusetts Council of Churches. Here are some excerpts.
This guest blog by Alan Johnson, organizer of Widening the Welcome, asks how we talk about mental illnesses. He writes, "Language can be tricky. It can elucidate things or muddy things. So what can we do? Keep on keeping on working on language seeking to describe how things are. Perhaps the best thing is to talk with the person who is affected by a “mental illness” or a “brain disorder” or a “disability” to see how they see it themselves. This is all about relationships anyway."
Last week I asked why we tend to limit our idea of diversity in church to ethnic diversity. Like one reader responded to the question last week, diversity of ability falls outside of most people's thinking because most people don't want people with disabilities included in their activities.
When we envision the diverse church, in our minds' eye, we see a diversity of skin colors, foods, ethnic identities, and languages. Usually, we also see we see the young and the old, male and female. But in our vision of the diverse church, we rarely see a boy who uses a wheelchair, woman who lives with mental illness, a girl with Down Syndrome, a man who is blind, or a woman who is Deaf and uses sign language. Why?
Mark Stephenson led several workshops on inclusion of people with disabilities in church life at a conference in Limuru, Kenya. At the third and final session of his workshop, a pastor stood up and said with great passion, "Brothers and sisters, we must do something about this. The time to act is now." Everyone then applauded!
Besides the usual accessibility stuff like ramps and accessible bathrooms, this dorm has built-in lifts, and pagers to call for help 24/7 from personal assistants (most of whom are also U of I students).
Let's keep talking about the affects of the Americans with Disabilities act on churches. How has your church been doing at including people with disabilities? What barriers still need to be overcome in building architecture, or in programming and communication, or in peoples' attitudes?
With the 20th Anniversary of the Americans with Disabilities Act (ADA) on July 26, it's a good time to reflect on the positive and significant changes brought into the church and into people's lives by this legislation.
With Rich Dixon's permission, I've copied an entry from his blog, Bouncing Back. In it, Rich applies an excuse analysis to physical accessibility of church buildings. The same analysis could be used to consider accessibility and inclusion in church communications, language used in worship and other settings, educational programming, youth group, small groups, outreach activities, work projects, and all other church related activities.
In my wildest dream for the church, I dream of the day that churches are so welcoming, so eager to have people with disabilities use their gifts, that the percentage of people with disabilities in the church is greater than the percentage of people with disabilities in the population at large.
A group of Massachusetts Institute of Technology (MIT) students from their Fluid Interfaces Group created a combination of hardware and software which allows people to use the movement of their hands in the air to interface with a computer. A wearable computer would allow a person who uses ASL to sign to a hearing person, and the computer would interpret the message into spoken English.
I visited a church recently. They worship in a beautiful, newly renovated facility. Every aspect of the facility meets code for accessibility: all on one level, pew cutouts, wide doorways, sloped surfaces, accessible parking spaces, accessible restrooms. Unfortunately, code doesn’t always square with the reality of living with a disability.
According to an AP article, the US federal government is suing the state of Arkansas because, it is claimed, Arkansas "illegally segregates hundreds of individuals in institutions across the state and places hundreds more at risk of needless institutionalization." The first question will be, what is really provided?
The Reformed Church in America is just beginning to catch on—and catch up—to the Christian Reformed Church’s prophetic focus on disability concerns. After giving occasional consideration to disability issues over the past several decades, we in the RCA are grateful to be welcomed by the CRC in this promising partnership of inclusion...
I’ve wondered why many older people who live with significant disabilities do not identify themselves as disabled, and even take offense at being called disabled. Yet, other people who live with disabilities not only embrace the term but even talk about “disability pride.”
Good news! Bill C-384, which would have legalized euthanasia and assisted suicide in Canada, was defeated on April 21 by a vote of 228 to 59. Thank you for raising your voice about how this bill would have impacted people with disabilities. Please continue to advocate for better palliative care throughout Canada, and for changed attitudes and improved services for people with disabilities.