Thank you for this. My son has Usher Syndrome, so in addition to already being hard of hearing and possibly going deaf, he will continue to lose functional vision until he is also blind due to retinitis pigmentosa.
There is so much hope out there for DeafBlindness in the form of "success stories" that showcase what a person can DO with their disability. There is not enough out there that reminds us, all of us, that our primary identity shouldn't be in what we DO but instead in whose we are.
A parent is one thing, and I'll try to lead as God allows, but I so hope that when he's in middle school my son has someone else, someone like you did, to guide him as the darker days come (or the days grow darker sooner, as is the case with RP). I hope he has someone to point him like a beacon to the One on whom all our identities should rest -- so that he can do as we all should do and NOT discern what he "can do" but RATHER what God would have him do.
Posted in: Through Darkness to Light
Thank you for this. My son has Usher Syndrome, so in addition to already being hard of hearing and possibly going deaf, he will continue to lose functional vision until he is also blind due to retinitis pigmentosa.
There is so much hope out there for DeafBlindness in the form of "success stories" that showcase what a person can DO with their disability. There is not enough out there that reminds us, all of us, that our primary identity shouldn't be in what we DO but instead in whose we are.
A parent is one thing, and I'll try to lead as God allows, but I so hope that when he's in middle school my son has someone else, someone like you did, to guide him as the darker days come (or the days grow darker sooner, as is the case with RP). I hope he has someone to point him like a beacon to the One on whom all our identities should rest -- so that he can do as we all should do and NOT discern what he "can do" but RATHER what God would have him do.
Thank you for sharing.