Mark Stephenson
After receiving an M.Div. degree, I served as pastor of two Christian Reformed churches for a total of 17 years. From 2006 through 2021, I was the Director of Disability Concerns for the Christian Reformed Church, and relish the close working relationship CRC Disability Concerns has with the Reformed Church in America Disability Concerns ministry. I have served as interim Director of the CRC's Offices of Race Relations and Social Justice since Feb 2020. My wife Bev and I have five living children, two daughters-in-law, and three grandchildren. Our oldest child, Nicole, was born extremely prematurely in the late 1980’s and lives joyfully with severe, multiple impairments. That label does not define her. She loves magazines, loves interacting with people, loves roller-coasters and wild amusement park rides, and she loves to worship and to pray with God’s people. In any group, she shares her own unique gifts.
Posted in: The Language of Mental Illnesses, Brain Disorders, and Disabilities
Many other websites have general discussions about this topic as well. Diversity Inc. discusses "What are the Best Words for Disability?" for a corporate setting, which I think applies easily to church settings as well. The comments about the challenge of translating the word "disability" into other languages opened a new horizon for me. Also in this article, the word "disabled" is flat-out rejected for use under any circumstances. One other mention, Kathie Snow's articles on people first language are thoughtful and practical.
Posted in: The Language of Mental Illnesses, Brain Disorders, and Disabilities
Like Ecclesiastes 3 says, "There is a time for everything." In my opinion, language matters, and what we call people and what we call the issues that people live with matters. So it's good to talk about words and language because language reflects and creates attitudes, especially in a forum like this. However, there's a time to refrain from such talk as well. When I'm with someone who is talking to several people with great joy and passion about the "handicapped people" at his church, I don't interrupt him or correct him in front of others. But I might pray for an opportunity to talk privately about "people first" language. Maybe such an opportunity will come, but then again, maybe not and that would be okay. On the other hand, if someone were talking about "crazies" and "retards" I would speak up right away, because bigotry cannot go unchallenged, or the impression is left that bigotry is okay.
Posted in: The Language of Mental Illnesses, Brain Disorders, and Disabilities
Good questions!
ADA is a common acronym used in the US for the Americans with Disabilities Act.
A2A is a resolution passed by the 25th General Synod of the United Church of Christ of which Alan Johnson is a pastor. Perhaps Alan could say more about this.
The Christian Reformed Church has passed similar resolutions including
Also, individual churches are encouraged to adopt a resolution on disabilities to commit themselves to full inclusion and engagement with peole with disabilities. Here's an example.
Posted in: Inclusive and Loving Communities Start with Us
I haven't heard that one, but it sounds wise to me. I wish I could remember to do the same.
Posted in: Identity or Intruder
Spitfire, Thanks for your kind words. I don't always live what I wrote - "Love is the closest we'll get to heaven right now." Nor can any of us, but this is what the church needs to be all about. As you say, living with MS in many ways depends on how the people around you respond to you. I hope many more people will read what you say. One of the best ways that the church can learn better how to love is by listening to and learning from people with disabilities, with the people with disabilities as the teachers and the temporarily able-bodied people as the students. Though the Bible says that those whom many judge to be weaker members are "indispensable," (1 Cor. 12:22) many people are put on the shelf when they develop disabilities of one kind or another. Your example of judgmental comments you have received is one way people shelve people with disabilities. Another way is by ignoring them. Still another, not asking people with disabilities to contribute their gifts of time, talent, and treasure in the ministry of the church. Thanks so much for sharing a gift in this forum, and God's blessings! Mark
Posted in: Language in Worship Can Welcome or Push Away
Rich and Veronica,
Thanks so much for both of your comments. What we are talking about here is a truly RADICAL (in the sense of getting to the root) hospitality. Most of us are not up to the task. The cost seems to great. I think that it requires of us who are already in the church a willingness to greatly expand our idea of appropriate behavior while still holding people accountable for truly inappropriate behavior. AND it takes Holy-Spirit-Inspired wisdom to determine what is appropriate and what is inappropriate, along with a good dose of speaking the truth in love.
For example, is videotaping kids in church inappropriate? I hope not. I just did that a couple weeks ago myself. But is standing in front of others who are seated behind you inappropriate? Yes, it's inconsiderate of others. So maybe the video-tapers could be encouraged gently to step to the side of the church to avoid standing in front of others.
An even more pointed example, I know a church who had a man attending who had an intellectual disability. He had a habit of kissing women in church on the lips - in the narthex and even sliding down the pew to do so. Clearly inappropriate, and not be be tolerated. However, the church firmly believed that God had led him to be part of their fellowship. So instead of actively throwing him out, or making him feel so unwelcome that he left on his own, they asked other men in church to befriend him and stay with him anytime he was in the church building. A schedule was organized so that he would have at least one friend with him at all times. They explained to him that his kissing behavior was inappropriate and that they would help him remember not to do it. Over time, real friendships formed and the behavior ceased. Praise God for this church's radical hospitality. The whole congregation grew through the experience, but upfront there was a cost in terms of time and emotional energy, and a willingness to learn how to enfold and truly love this man in a way that embraced him and held him accountable. Isn't that a picture of how healthy churches embrace ALL of their members?
Mark
Posted in: I Have a Dream for the Church
Thanks JJ. I'll spread the word to people I know in the Chicago area. Mark
Posted in: I Have a Dream for the Church
I just put two notes about this on our Facebook page which you can find at www.facebook.com/crcdisabilityconcerns. I'd like to encourage you and other readers to "like" this page. Mark
Posted in: Sniff a True Wit’s Bare Pit
:-) It helps to say them out loud. Here are a few more:
Gold bands form part
Bruce grips pink chips
Blue plant beach man sold log, threw sticks.
Mime whiz: funny
Posted in: Sniff a True Wit’s Bare Pit
Thanks for these statistics, Linda. Yes, very easy to imagine. No wonder people who are deaf and hard of hearing find it frustrating that hearing people often expect them to be fluent in reading lips.
Posted in: We Need to Redefine Excellence in Worship
Mark,
Thanks for your comments. Maybe an illustration would help most to make my point more clear.
Our family has attended an annual diversity service the past several years which has been sponsored by our classis diversity team. Those services are rich with participation by Latino, Lao, Vietnamese, African- and European-American people as well as people with disabilities. One of the women who usually participates in leadership has cerebral palsy which makes her speech somewhat difficult to understand. That fact alone would be enough for many worship committees to exclude her from participation even though she has important things to say and pray. They would leave her out because she does not reach a standard of spoken excellence that they are looking for. She has spoken and lead in prayer in the past to the great appreciation of those present and to the greater glory of God.
It seems to me that many people view worship as a performance which must attain some standard rather than as a dialogue with God (which I believe is the higher standard to which James calls leaders of God's people). As a result, many people with disabilities are written off by worship committees for worship leadership with the reason given that the worship service must be excellent (using the achievement of a certain human standard as the definition of excellence).
I can easily imagine a person who is a polished speaker by human standards who detracts from dialogue with God in a public worship service, and a person who is not a polished speaker (like the woman I refer to above) who in leading worship draws the entire congregation into deeper dialogue with God.
Is my point more clear now?
Posted in: We Need to Redefine Excellence in Worship
As an added comment to this discussion, Pastor Bill Van Den Bosch sent me the following note on March 4 which is copied here by his permission, "We had a retreat today with some folks from Oakdale that are part of a sermon training team and we discussed this very matter. We settled on an an understanding that whatever definition of excellence we want to settle on (technical excellence, presentation excellence, etc) it should create an inclusive worship that recognizes the presence and gifts of all and not an exclusionary worship in which the presence and gifts of worshipers - including those with disabilities - are not seen as "good enough" or bringing less than the best to God. The challenge that we have is that it is easier to measure the excellence of musical or verbal presentations than it is to measure excellence of the heart."