I have been disabled and mostly house bound for 25 years! I was a type A person before and in some ways, I still am.
The reason for this post, my first by the way, is to let out my frustration with this struggle of survival mentally and physically fighting to stay positive. I am tired!
When you have been sick for a long time, your friends and family slowly withdrawal due to your inability to participate in "normal" things of life! You get more isolated as time and your condition worsens. Your world becomes smaller and smaller till basically it becomes just survival.
I am running out of energy at the moment so I will finish this post in segments. Thx