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Posted in: Mom's Dementia

Mark Stephenson on December 9, 2010

In reply to by anonymous_stub (not verified)

B, thank you so much for your comment because it helps me and others get a deeper understanding not just about you, but about others too who are living with PTSD. For churches seeking to minister to people with PTSD, the Calvin Institute of Christian Worship has a fine collection of resources including some ideas for worship ministry and suggestions about use of the lament psalms. See http://cicw.cc/search/results.html?q=PTSD&btnG=+

Also, I just read an insightful blog entry by a Christian who has dealt with depression and is frustrated by the "happy gospel" presented in so many churches. See https://laurelville.wordpress.com/2010/12/08/lifelines-and-the-happy-gospel/

Mark

Posted in: Mom's Dementia

Mark Stephenson on October 26, 2013

In reply to by anonymous_stub (not verified)

Elly, yes! Same with my mom whose journey with dementia lasted about 12 years. Though difficult in some ways, we still had a lot of good times together during those years, and mom shared her love with others in her own way nearly to the end of her life! What a loss if some doctor had decided that she did not have sufficient quality of life and euthanized her.

Posted in: Mom's Dementia

Mark Stephenson on November 8, 2010

In reply to by anonymous_stub (not verified)

Dementia runs strongly in my mom's side of the family. So of course I wondered over the past few years (with dread) whether this might be the way I'll spend my final days as well. As mom's dementia has gotten worse, ironically, I have grown less concerned about experiencing the same end myself. With the help of some medications to calm her anxiety, she has been amazingly content and good humored most of the time. She's in a good Christian place where people genuinely care for her and the other residents. She is comfortable overall. Sometimes it seems that the biggest discomfort with the dementia is not experienced by my mom, but by we who love her. Maybe, if we took our cues from her, we would be less anxious about it as well. Could that be one of the blessings that God is bringing through this decline in my mom's life - a way in which the wound of seeing my mother's decline has brought me just a little more trust in my heavenly Father? Maybe.

Mind you, I'm not saying that God allowed her to get dementia for my sake. Not at all. But I wonder if this is one of the collateral blessings that God is bringing to mom's family through her dementia.

Mark Stephenson on October 29, 2013

In reply to by anonymous_stub (not verified)

John, thanks for your comments. To me there is a vast difference between ceasing to prolong life by removing life support and actively snuffing out a life using poison or some other means. My understanding is that palliative care is so much better nowadays that nearly all people can face death without fear of painful suffering. A couple years ago, I wrote a reflection on the death of Dr. Jack Kevorkian. In response, Rev. George Vander Weit articulated some of the same arguments you make, and he made some additional points as well.

Caroline asks a really good question, so I'll repeat it: "Can we imagine creative ways to provide meaningful work to people with developmental disabilities who desire to be integrated and yet will need on-going support?" Ideas anyone?

John, a great suggestion for a major conversation. This gets even more complex as we consider that many of the Network readers are Canadian (including Caroline, whom I know). There is no federal disability law in Canada comparable to the Americans with Disabilities Act, though there is a federal health care system. Each province has its own set of laws pertaining to accessibility of built environment, work, etc. Whew!

Posted in: Mom's Dementia

Mark Stephenson on November 22, 2010

In reply to by anonymous_stub (not verified)

John, what a touching song. Not many popular songs are written as odes to people with dementia! Ms. Eikhard gives a beautiful gift to all of us who have a loved one with memory loss.

In the spirit of sharing, here's a link to a Parade Magazine article from yesterday's issue, "Unlocking the Silent Prison." The main point of the article is that research has shown that people with dementia find written communication much more useful/memorable than spoken communication. For example, one person wrote on a note for her dad, "We are going to the doctor," instead of just telling him. The written note made it possible for him to comprehend that they were going to the doctor, and he didn't repeatedly ask where they were going because he knew. I'm going to try this with mom. 

Mark Stephenson on October 30, 2013

In reply to by anonymous_stub (not verified)

Thanks Ron. I hope and pray that the respect you express continues to grow among all of us. Not every one agrees on whether our countries should enter into various conflicts around the world, but the men and women who actually fight those conflicts need our appreciation, encouragement, respect, and (sometimes) assistance.

Posted in: Mom's Dementia

Greg, Well said. Good example about the stigma that we heap on the heads of many people, such as your example of people living with mental illness who in turn believe the stigma and fill with shame. If we are going to present that wonder of the new life that comes through the work of Jesus Christ, we need to see Christ not only as Sacrifice for our sin, but also as Reconciler between us and the Father, Healer of broken lives, Cleanser of shame, Victor over the powers of evil, Restorer of shattered relationships, probably more. That gives a much deeper sense of what he meant when he said that he came to bring life to the full.

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