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Mark Stephenson on January 26, 2011

In reply to by anonymous_stub (not verified)

Ken,

I appreciate so much that you stay involved with discussions even though sometimes they are difficult for you.

As to your final question, I think that the right time to be honest is always. But this medium of a public discussion forum on a social network has some severe limitations as you acknowledge. In interacting with others, we can read words, but we don't hear the voice, see the eyes, or experience the personal connection that can come with a face to face discussion. So it is very difficult to guess what someone's intent is simply from what they say or do not say.

It seems to me that as different people post our comments, we are writing out of our own experiences and telling our own stories for others to "hear." (Clearly a lot of people are listening since this already has had 88 page views as of the time I write this.) We're engaging together to get a better understanding of how each of us sees life and experiences the world. So once again, thank you for telling how you see life from your experience. This is helpful to all who read.

God's blessings, Mark

Mark Stephenson on February 10, 2011

In reply to by anonymous_stub (not verified)

Brenda,

Thanks so much for sharing a bit of your story and your faith that God holds you even when you feel it is so difficult to hold on to God. I really hope we can all grow in the art of listening to one another. That's so crucial to being a loving community.

The questions you raise about inpatient care are very difficult ones. I assume that mental health professionals are aware of the dangers you raise (similar to eating disorder clinics in which the girls share their "tricks" with one another about how to purge or restrict without getting noticed). I hope and pray we can find a better way someday.

God's blessing and strength to you, your family, your pastor and friends,

Mark

Mark Stephenson on August 11, 2011

In reply to by anonymous_stub (not verified)

Shirley,

Thanks for the heads up about NAMI. They have been helpful to many people. It's good to know about resources when a person and their family can feel very alone and isolated. Sadly, there's so much stigma associated with mental illness that people frequently do not feel safe sharing about their mental illness with people from their own church. I hope that attitudes will change over time so that churches are the first place people with mental illness turn for support. Pathways to Promise, of which the Christian Reformed Church is a member, is a fine organization dedicated to helping churches in their ministry with people who have mental illnesses.

Parents are also invited to share their stories on a Parent to Parent Support Forum which we have just started here on the Network.

Blessings, Mark

Mark Stephenson on February 11, 2011

In reply to by anonymous_stub (not verified)

Brenda, thank you for this blessing on me, my family, and my ministry. May God continue to abide in your life and your family's day by day, in the good times and the difficult ones. May you know his constant presence and abiding love. Mark

Joe, thanks for digging back through the archives to find this blog. The tide of public neglect and fear toward people who have autism and other disabilities is turning, but it takes a long, long time, and it takes people working together and continuing to speak up. There are people in society and among God's people who are catching on. Thanks for adding your voice. 

Joe, it must be very frustrating for you and your friend to visit different churches and not find the kind of welcome that all of us long for. When Martin Luther King Jr. was jailed in Birmingham, he received a letter from several other clergy in which they opposed segregation and urged him to be patient, but as I recall he responded that the time for patience was over. I can imagine that you and your friend feel the same way, but the challenge for you is that the tools that King and his followers used won't work. Your hope is to connect and find belonging, not use non-violent protest to fight for your companion's rights. As difficult as the fight for civil rights is, it seems that the longing and desire for belonging is even more difficult because one cannot fight for these, they must be offered by the other as gifts. Like you, I hope and pray that you and your companion can find a congregation that will offer these gifts with joy. 

Joe, thanks so much for posting your reflections on looking for a new church with your friend. I'm learning so much by reading what the two of you are experiencing. It's challenging for anyone to find a new congregation, and your reflections show that the challenges can increase for some people. I'm hearing in what you are writing a call to churches to redouble our work in becoming hospitable and safe communities. 

Joe, yes, this pastor's communication shows a wonderful sensitivity to this man, and shows a desire to teach the congregation how better to understand and interact with him both with the invitation to the man to exit the service before talking with anyone and with the request for permission to explain to the congregation why this man needs to do that. Loving hospitality isn't rocket science, but it does take some willingness to learn and engage in new ways of interacting. 

Mark Stephenson on December 30, 2010

In reply to by anonymous_stub (not verified)

Chong,

Thanks for sharing this. Hans Reinders has done some very helpful reflection on the image of God as well in his book, Receiving the Gift of Friendship: Profound Disability, Theological Anthropology, and Ethics. Many people say that to be made in God’s image means that we have certain abilities such the ability to think or the ability to obey or disobey God. But these ideas about the image of God exclude some people with disabilities, especially people with severe intellectual disabilities. The image of God begins with fact that we all share a common humanity and ends in God’s love. According to Reinders, we are “created in God’s love, since love is what defines the God in whom Christians believe.”

Yes, and even no diagnosis. Don't all of us who are parents wish and pray for encouragers for each of our children? I think that's why it's so important that each of us be encouragers to other people. After all, everyone is someone's child. Dr. James Kok and others have written many helpful articles on being an encourager in the Care Capsule which is part of Kok's Simple Acts of Care and Kindness website which has sections for kids, parents, and teachers.

Mark Stephenson on January 18, 2011

In reply to by anonymous_stub (not verified)

Ken, I'm delighted that this was helpful for you. Somehow, in the popular imagination, disability and mental illness have come to be associated with evil and violence. Therefore, many of the villains in movies and TV have disfigured faces, problems with mobility, or mental illnesses of various kinds. But the truth is this: not only are people with mental illnesses and other kinds of disabilities no more likely to be perpetrators of crimes than the general population, but also they are far more likely to be victims of crime than the general population. I assume that the movie and TV producers figure that portraying a man with a severe limp who abuses a nondisabled little girl will get more viewers than portraying a nondisabled man abusing a little girl who, say, has Down Syndrome. Together, we can keep fighting stereotypes. The truth is being told, and more people are listening. It just takes so long.

Michèle, thanks for your story and comments. You describe the enormous challenge that public health officials have. On the one hand, we don't want to go back to the era of One Flew Over the Cuckoo's Nest, when people were institutionalized inappropriately. The bar is set very high for involuntary hospitalization. On the other hand, it seems that people usually have to hurt themselves or another before they can be hospitalized against their will. And in the case of your story, even in the tragic instance of the murder of a child, your cousin was still allowed to refuse help. The intrinsic challenge of judging when and when not to hospitalize someone against their will, combined with limited public dollars allocated for mental health and overworked mental health workers results in a lot of suffering that could be abated somewhat. Thinking about these challenges, about the story of your cousin and her child, and about other similar stories in which people refused help even though they could have benefited from it makes me start to feel hopeless. I'm thankful that you are helping me and others at least to be aware of the issues. Perhaps some better way can be found. God, help us! God bless the public health officials and lawmakers with compassion and wisdom. Amen

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